Medpac – Very Orange But in a Good Way

I received an Amazon order in the post this afternoon and it was my bright orange Medpac and I’m very impressed.

This Will not be a full review I’ve only had it a few hours but I wanted to share as they have sizes and shapes to suit all needs and I’m genuinely impressed by what I have seen so far.

They are no joke bright orange this is good because in my case in contains epipens and they need to be found quickly if they are needed.

I ordered the one to fit two epipens and it fits 2 epipens snugly it has a  clip on the side of it and helpful little cards to put important information on.

I’ve only had it an afternoon and already someone has asked me where I got it so here is a link Medpack Link

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6 Things Every POTSie Wants You to Know…

Lily in Grace

Many of us in the POTS community have shared stories, posted websites, and pictures hoping to raise awareness during the month of October(the above picture is me sitting outside so I can watch my daughter play.  Yes, I have to use an umbrella to shield the sun and wear compression hose. But that’s ok).  Knowing October is Dysautonomia Awareness Month, we have made a more concerted effort to use our voices to advocate for this debilitating condition.  Just this week I started going live on a POTS support and awareness page, and I have been blown away by the responses.  I have heard story after story about regular people living pretty incredible lives and then…wham…POTS showed up.  For many of us, we can remember the moment when POTS entered our lives.  It’s like a crazy ex-boyfriend/girlfriend showing up out of nowhere and refusing to leave.  I think is it incredibly…

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BLIND OR NOT BLIND; WHO’S PERCEIVING WHO?

In answer to Ian’s first question… all the time with EVERYTHING!

Ianbev72's Blog

Do you ever feel as if you have to justify yourself to people who have little or no knowledge of what you do or how you run your life? Ah ha, another loaded question you think, but I can assure you, it’s not asked with a loaded agenda.

As I’ve just started my new job, I’m going through the access to work process again. Dealing with the DWP (department for works and pensions) element of this can be an experience to say the least and often demands a huge amount of patience, humour and an ability to swear a lot under your breath.

Admittedly, they do have to look after a budget which needs to go around a bit, but in my mind it should also necessitate an understanding of the challenges that we face on a day to day basis. One example of this is the need to have…

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How the next Government can make Everyday equality a reality

This is so important disabled people make up more than 20% of the electorate so it’s going to be interesting to see how each political party sells there policies.

Saying this there are huge problems nation wide with the accessibility of polling stations AND postal voting – during every election there are people denied a vote. Amongst the community with learning disabilities many are denied there right to vote – Mencap did some great work on this particular topic.

Finally the things SCOPE point out here really shouldn’t be that hard to achieve and it’s sad to think that in 2017 we are still asking for the same basic things.

Scope's Blog

In just six weeks’ time voters will go to the polls to have their say in the General Election. 

Today we are setting out our calls for the next government – commitments and changes we are asking for so that by 2022 disabled people have the same opportunities as everyone else: Everyday equality.

We know that in 2017, life is still much harder for many disabled people than it needs to be. Too often disabled people can’t access the support they need to at home, in education or work and face negative attitudes, extra costs and pressures on family life.

Action is needed in a range of areas which is why we would like the next government to take a cross-government approach to disability which tackles the barriers that prevent disabled people from participating fully in society.

Today we are calling for action in three main areas:

Improving disabled people’s…

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Let’s talk showers….

This is pretty similar to my shower experience only I have an adapted shower compleate with shower chair but I know if I’m not feeling 100% having a shower will make it worse!

I didn’t have a shower today even though I needed one.

So next time you think I look a bit rough don’t judge I’m not a skank I just can’t shower.

This little life of mine.

“Wow! I feel so refreshed after that shower!” said no person with POTS, ever. Showering is not a relaxing pastime. Nor is it ever possible to have a ‘quick shower’ with POTS, so let’s forget that idea right off the bat. Showers take time, preparation and energy. Lots and lots of energy.

First things first. You have to ask yourself, do I REALLY need this shower? Am I going to be in close proximity to other human beings? Will a GP or member of the opposite sex be poking around anywhere? Am I 100% sure I can no longer get away with wet wipes and dry shampoo? If the answer to any of those is NO, hold off on the shower.

Next ask yourself, do I have the energy? Do I have the time? Am I well enough? Again, if the answer to any of these is NO then leave…

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