This is sweet hope everything goes smoothly!
A two-year-old girl born with a condition which means her brain forgets to tell her to breathe is about to leave hospital for the first time.
Maisie Harris from Gillingham, Kent has been at Great Ormond Street Hospital in London since being transferred from Medway Maritime at three months old.
She has congenital central hypoventilation syndrome (CCHS), also known as Ondine’s Curse.
A new, portable ventilator has enabled Maisie to go home.
The machine knows when she is able to take her own breaths and when she is likely to have a CCHS episode and require support.
It has batteries and a carry case, so Maisie, who is three on 23 October, will be able to go on outings with her family and go to school when she is older.
Staff on Great Ormond Street’s Miffy Ward held a party for her…
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