Your Voice Matters – Make Chronic Pain Visible


EDS and Chronic Pain News & Info

Your Voice Matters – Make Chronic Pain Visible

WHY WOULD TELLING MY STORY AND SENDING A LETTER MAKE A DIFFERENCE?

The National Fibromyalgia & Chronic Pain Association and pain patient organizations were recently asked to reach out to people with pain and their families directly to ask about their experiences.

People making decisions that significantly affect your quality of life (federal officials, legislators and policy makers) need to know if you are receiving adequate pain management and relief.

Telling your story can affect their policy decisions and new areas of research.  

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