Corneal Calamity

Well its been almost 2 weeks now since I saw a corneal specialist at the eye unit, meaning I now have 2 eye constants! For those not in the know the cornea is the clear window at the front of the eye, it plays a role  in shaping the eye and keeping it at the right pressure.

For a while now i have known I have a problem with mine, it all started way back when I started trying to wear contact lenses again, I was getting on fine with them, and gradually increasing the time I spent wearing them, not wearing glasses was great! As far as I was aware there where no problems until I went for a check up and it was found that my corneas on the other hand HATED the change and where dye was placed in my eye they shone back brightly in such a shade of fluorescent orange that the optometrist doing my contact lens stuff was utterly shocked and ran off in search of a camera. She didn’t find a camera but immediately stopped all talk of contacts and reffered me to see my eye consultant, this is probably approaching 2 years ago.

I was diagnosed with corneal oedema, basically flid filled sacks where forming on my cornea as a reaction to having higher than normal intraocular pressure (caused by Glaucoma) a change in medication and no more contacts for me and the general consensus of the consultants I saw was that all would be well.

unfortunately that was not the case, my corneas have continued to be cloudy, and got cloudier. To be perfectly honest I have not really noticed this except maybe when I am very tired I fund I struggled to read even large print as everything is just rather blurry. I was refered to  a corneal specialist.

Now we are back up to me sitting in the doctor’s office a few weeks ago, I was fully expecting on seeing Mr Corneal Specialist that I would simply have another change of medication and that would be that problem solved, what I was essentially told was totally unexpected and a total shock to the system.

It turns out I need a corneal transplant in both eyes, this involves taking the cornea from a donor (yes a DEAD PERSON) and implanting it into my eye, once my own damaged bit of cornea has been removed.

This is because the cells right at the back of my cornea are dying as a result of all the surgery I had as a baby that saved my sight in the first place, apparently it’s happening to everyone who had the kinds of surgery I had back in 1988. My cousin born a few years before me with the same eye conditions has exactly the same problem. So the death of the cells in the back of my cornea is causing them to break away from the rest of my corneal float around and get in the way turning all cloudy and full of fluid.

Cornea transplants are quite common and are more often than not successful and rejection is relatively rare, and if the worst does happen they simply repeat the surgery. However for me there are more risks, my eyes are smaller than average and I don’t have a lens which is normally critical in helping the eye keep its shape during the surgery.

On the plus side the surgery might improve my vision, I say this but too much of an increase of my vision would defiantly be a negative for me. I have always been at very best partially sighted, if I was offered a drug that could get me full sight tomorrow with no risks and a 100% guaranteed success rate – I would not take it! I am happy the way I am being blind is part of my entire identity I have never really known any different to suddenly be fully sighted I would struggle to cope with such massive life change.

On the other hand the surgery might not work, it could all go terribly wrong and might damage my vision further.

However by far the worst case scenario is that I do nothing, slowly the condition of my corneas will deteriorate and I will lose all the vision I have, the amount of pain I experience in my eyes would also increase. This scares me, as much as I don’t want to be fully sighted I don’t want my vision to deteriorate dramatically either, I value the eyesight I have enormously and the thought of going totally blind is heartbreaking for me, it would without a doubt turn my life upside down, as it would with anyone.

It’s been a difficult few weeks trying to work out what I want to do about all this ready for when I speak to Mr Corneal Consultant again in a  few months time, the decision actually seems clear, I have to go for surgery and just hope an pray everything goes to plan. To further complicate matters I am not ashamed to say I am rather phobic of hospitals, them make me incredibly uneasy. I am lead to believe that the surgery requires a 2-3 day stay in Hospital. I can just about cope with a visit to the eye unit the thought of spending time actually IN hospital scares the pants off me – As it would lots of other people I’m sure.

I see Mr Macular Consultant at the end of this month and there was talk when I saw Mr Corneal Consultant that I need to see a Glaucoma specialist as well as things are not to stable in that department at the moment either, apparently I may have come to the end of the road when it comes to glaucoma medication too, meaning I might need more eye surgery to do something for my glaucoma too.

Overall in it’s a particularly unhealthy time for my eyes, but there is still hope!

For those who like to watch disgusting things here’s a link to a Youtube Video of the type of surgery I need, I warn you it’s not nice to watch!

Advertisements

A mixture of happenings

I think I already have a post with this title in the blog archive somewhere but really its sums thing sup so well I had to use it again!

First off I have picked up the latest bug that’s going around, went down with it on Friday so have been feeling rather rough and had to have a couple of days off college. Talking of college my first exam was on Monday so that was perfect timing in terms of getting ill.

However it’s not really being ill, college or rubbish exams I wanted to blog about today it’s the happenings of Tuesday.

Tuesday morning I had the hospital for an eye check up which I was kind of worried about because of all the stuff the contact lens people.

Well the cornea mystery has been somewhat solved, I have another eye problem to add to the list cornea oedema. In English they a basically tiny little fluid filled cysts on the surface of my cornea that are microscopic, they make my cornea a little bit more cloudy than it should be. Right now they are not really causing a problem apart from I will never be able to wear contact lenses which isn’t the end of the world.

Unfortunately my glaucoma was rather sky high in my left eye, it was 28 (18 is the highest it should be) but my right eye was not quite as high. The plan of action is to change my eye drops and luckily it hasn’t affected my vision so here’s hoping the drops sort it all out! I have to go back in 3 months for a check up; it’s a bit frustrating because my glaucoma has been well under control for about 4 years but meh these things happen.

Then in the afternoon I met Gus he is a black Labrador retriever who is going to be 2 years old this Saturday we went for a walk and it was decided jointly between all three of us, me Gus and the guide dog trainer T that we were a successful mach!

So I will be disappearing off to train on the 23rd of June and I’m counting down the days!

Gus is absolutely beautiful we walk at the same pace and he is lovely and tall I feel like we instantly bonded!

Here is a picture of us at the centre yesterday

The contact lens latest

Well the contact lens latest, it didn’t go so well to put it bluntly!

My cornea’s are fuc£ed!

Lots of damage showing up on them basically which is apparently a new thing. Even without the contact lenses in which rules out them as the cause. At this stage they cant do any more about the possibility of contacts until they find out what the hell is up with my eyes. The contact lens specialist said she had never seen anything like it so is referring me back to a consultant.

Its not so good, bit of a worry really that I might have another eye condition, I don’t want another eye condition I have enough already! My consultant appointment is not until the 13th of May so I suppose its less than a month but still I just want to no what’s up and get it sorted.

Contact lenses- the very latest

As updates go this one is a little late but meh its here now!

Basically I had my last contact lens appointment last Tuesday, it DID NOT go AT ALL well!

My vision is quite good and there comfy and everything but when it came to taking them out and the Doctor looking at my eyes it was really bad. My cornea’s hate them! They were damaging all the cells in my cornea, which if left would lead to seriously massive eye infections or bad ulcer of the eye. The worst thing is my Doctor actually said that it was the worst cornea reaction she had ever seen! That’s bad, she’s an eye specialist… she’s probably seen thousands of eyes in her time and mine was the worst!

Obviously its looking a lot like contacts aren’t going to work out, but we haven’t given up just yet, there are 4 things it could be:

  1. I’m allergic to the contact lens solution.
  2. I’m allergic to the contact lenses.
  3. I have another eye condition to add to my collecti0n.
  4. My eyes hate contact lenses full stop!

None of that is good, she has ordered me in an extra sensitive contact lens to see if that’s it, the chances of me being allergic to the solution are really small, so its a wait and see kind of thing.

I really hope I don’t have another eye condition I think I have/ had enough of them all redy!