I’m free got my trauma boot it’s really hard to walk in as they didn’t want to tighten it while still numb it’s been a long day I am ready for a nap!

View on Instagram https://ift.tt/2Ndo0j6

I have a lot to say about this post and #paparazzi first off some solidarity. I have gone to my GP surgery multiple times in my PJ’s! Here’s the deal EDS feels like your living with permanent flu or the day after a car crash every day… if you have a flare and your sick you need to get to the doctor. There simply isn’t the energy to get changed into proper clothes go to the doctors and then get changed back into your PJ’s – ladies lets be real who wants to wear a bra if your sick? Next I love how @lenadunham had used what the paps were trying to manipulate and twist to make people think less of her to turn that into awareness own it and speak out. That takes one strong woman and it’s not easy so thank you. I stand in #solidarity with you, this is a horrible thing to happen and you turned it into something positive. Posted @withrepost • @lenadunham I could choose to be embarrassed by these paparazzi pics- I mean, that’s probably the point of someone publishing them in the first place- but I’m really not. I could lie and say it was an early Halloween look (Don’t you get it? I’m going as a con woman leaving a Florida Keys jail after being acquitted of murdering her husband, and now she’s trying to get disability license plates.) But the truth is just: This is what life is like when I’m struggling most with chronic illness. An Ehler-Danlos syndrome flare means that I need support from more than just my friends… so thank you, sweet cane! For years, I resisted doing anything that would make my physical situation easier, insisting that a cane would “make things weird.” But it’s so much less weird to actually be able to participate than to stay in bed all day. And yes, you’d better believe I’m wearing my nightgown. I was walking four feet to the car to go to the doctor and I wanted to be full cozy. I mean, didn’t Bieber wear hotel slippers for like five years? Yeah, so I can wear my glamour nighty for two hours. And then an hour later, I’m in a meeting look tackling the job I love. That’s the two-fold life of a woman with chronic illness; we still rock our dreams and goals and passions (and fashions) and we live many lives in one day. Tell me about your day!

View on Instagram https://ift.tt/2PJbidq


Did you know I have over 50 photos avalible to purchase online on the #EyeEm platform? They have a strict criteria for allowing photos into there marketplace to ensure only the highest quality images make the cut.

Not bad for a blind amateur photographer!

All the photos I’ve uploaded for sale are taken independently by me, occasionally I might show a photo to someone that can see to check it’s in focus but other than that it’s all me!

Check it out here:


#BlindPhotographer #BlindPhotography

#IOS #Accessibility How I use an Apple Watch

So the hashtag #BlindPeopleUsePhones went viral a while back after a meme surfaced showing a person with a white cane using a phone… the narrow minded thought was that if someone could use a phone then they MUST be faking there visual impairment.

Since that happened many many visually impaired people have flooded social media with images and captions of them using there phone.

Also since this happened despite efforts for organisations like RNIB I have heard people say:

Look she’s using her phone

I also had one occasion where a random stranger thought it would be ok to take pictures of me using my phone on the bus… in case your wondering that is NEVER ok!

So how do I use my phone… it’s ok to be confused by the title and the link referring to the Apple Watch I’m lumping the two devices together because how I use them is very similar.

Saying that I’m going to separate the Apple Watch for just one minute.

With the Apple Watch I have purchased the largest size, I need that extra few millimetres to make things as large as possible on screen. I then have the system font set to the largest size possible. The final thing that is ‘different’ is I use the XL digital watch face – meaning I have no complications and this is set to a pale colour to maximise contrast.

Now let’s talk about iOS devices as a whole.

I use a combination of VoiceOver, Zoom, large fonts and Siri to access my phone watch and my ancient Mac at home.

Sounds like a lot… kinda complicated? Well it kinda is!

My vision can change from hour to hour very dramatically… not in a good way.

So I may start my day using just larger fonts and the screen brightness all the way up.

I end my day needing to use voiceover unable to use the screen at all.

As an aside I use Siri voice assistant with voice feedback a lot!

I also have my phone set up to read the screen on command.

For more information on Apples accessibility for visually impaired check out this link.

So yes blind people can use phones, computers, (talking) cash machines and smart watches.