A letter to Fable …..

Really proud of how far this chick has come in just a year and Honered to call her my friend! Ollie sends a lick across the chops to Fabel!


Dear Fable,

Happy qualification anniversary my gorgeous girl! I can’t quite believe its a year since we qualified as Team Mable can you? So much has happened, we have done so many things together, there have been high and lows, good days and bad days, tears and laughter. But the one thing that has always been there and continues to grow every day is how much I love you.

Before you came into my life I thought I was quite happy, or at least content, with my life. I made the best of it but I had no idea just how exciting, rewarding and amazing life could be. I had always had the nagging feeling that my life wasn’t as good as it could be, something was holding me back and in hindsight I think I always felt slightly anxious and a bit resentful that I wasn’t able to be…

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Arthritis Raises Suicide Risk

EDS and Chronic Pain News & Info

Arthritis Raises Suicide Risk | July 07, 2016 | by Batya Swift Yasgur, MA, LSW

Arthritis doubles the risk of suicide attempts, according to a new study conducted at the University of Toronto and published in the June 14, 2016 issue of Rheumatology International.

Esme Fuller-Thomson, PhD, MSW and colleagues analyzed data from the 2012 Canadian Community Health Survey-Mental Health, consisting of 4,885 individuals with arthritis and 16,589 without arthritis. They found that 1 in 26 men with arthritis has attempted suicide, compared to 1 in 50 men without arthritis.

The prevalence of suicide attempts in women with arthritis was likewise higher than in those without the illness (5.3% vs 3.2%, respectively).

The study had two objectives:

(1) to determine the odds of suicide attempts among those with arthritis and see what factors attenuate this association; and

(2) to identify factors associated with suicide attempts in these patients

Even after…

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Nail Biters May Develop Fewer Allergies

Brilliant I was constantly told off for this as a kid!

EDS and Chronic Pain News & Info

Thumb Suckers and Nail Biters May Develop Fewer Allergies – New York Times

Babies have been seen sucking on their fingersin utero weeks before birth. But the sight of an older child with his fingers constantly in his mouth, sucking her thumb, biting his nails, can drive parents crazy, bringing up fears about everything from social stigma to germs.

A new study suggests that those habits in children ages 5 to 11 may indeed increase exposure to microbes, but that that may not be all bad.

In astudy published Monday in the journal Pediatrics, researchers drew evidence from an ongoing study of New Zealand children to show those whose parents described them as thumb-suckers and nail-biters were less likely to have positive allergic skin tests later in life.  

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4 Sources Of Functional Illiteracy That Technology Can’t Fix (Yet)

This is really thought provoking and interesting – I HATE it when people suggest that I can’t read.

Where's Your Dog?

Most blind people are perfectly literate. We may need screen readers and/or braille dots to do it, but most of us can read as well as any sighted person. Further, much of the reading material that was once unavailable to us—magazines, newspapers, pamphlets—can be accessed online. It’s much easier to be a bookworm in 2016 than it was in, say, 1995. The world of the written word is, more often than not, accessible now. There will always be exceptions, though, and those unfortunate little exceptions can conspire to create a lot of grumbling, at least in my life. You see, no matter how accessible the world becomes, blind people will remain functionally illiterate when it comes to…

1. Signs

Signs: helpful little things, which do a lot more than indicate street names and business establishments. GPS and a healthy knowledge of the city was not helpful to me when I…

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#WordPress #iOS interface issue #A11y

So you may have noticed things have been quieter than normal of late even my reposting has slowed down this is for 2 main reasons. 

1. If your not that well for a while you have to prioritise the things that are the most important in your life. 

2. I for the life of me cannot work out how to reblog posts using the iPhone app for WordPress!

Today I’m going to talk about issue 2 back in the day in the app used to have a dedicated reblog button this was great but then it changed. 

One app redesign later you had to click the share button and select WordPress and then you would get a screen in the app for all your options like say title and body etc. Simple (although actually not perfect). Your link and a quote would be in the body text and you could edit this and the title would be a default. 

I’ve gone to do this again today and discovered it’s changed again. 

Now the options just share the link for what you want to reblog the title is from what I understand the link. 

It is totally bizzar so I attach a photo… Low vision users I apologise but this won’t have very useful alt text as I don’t understand it myself in the first place. 

So iOS particularly iPhone users how do you reblog posts you want to share? 

I’m either missing something simple visually or it’s really not very intuitive. 

Help me people there is so much great stuff out there I want to share with you.

Notes On Blindness- A Review

From all the reviews I’ve read I think if I were to actually watch this film there would be vomit… Just so cliche!

Same Difference

Notes on Blindness is the true story of academic and theologian John Hull. After losing his sight in the early 1980s, Hull began to record his observations and memories of life, blindness and life with blindness on hundreds of audio cassettes.

This documentary, in which actors lip-synch extracts from those recordings- and from more recent interviews with Hull, gives viewers a small insight into one family’s experience of losing eyesight and learning to live without it. At its heart, Notes on Blindness is a love story- the story of three very different kinds of love. First, the love between man and wife, second, the love between father and child, and third, the love between a man and his eyesight.

Hull (Dan Skinner) and his wife, Marylin (Simone Kirby) often seem to compare the experience of him going blind to death. She often says that she feels like he is going…

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If I Had A Million Dollars…

I’m a Christian so I don’t gamble so there is no chance of me winning the lottery but yes I often think this given my physical disability too… There are a couple of other things too one of the latest video magnifiers that can both magnify things and read the text out loud would be really appreciated. Although these things can be amazing for many who can afford them there are many who have to just make do and get on. 

I was assessed for a personalised budget to help me with these kinda things a couple of years ago it was assessed that I would need an average of 6 hours of support a week. Months of filling in forms and assessments and being asked very personal questions and after it all my local council awarded me £6 of funding a week which would pay for less than an hour of support. 

When I become a rich and famous copyeditor (stop laughing, damn it), I know exactly what I will do. Forget the posh beach vacations and the shopping sprees and the sumptuous dinners (okay, I’m keeping the dinners). When (not if) I have a million dollars at my disposal, I’m going to get … a personal […]


#MayWeSay Complications of Uncontrolled, Persistent Pain

Complications of Uncontrolled, Persistent Pain | January 28, 2012   Incurable, persistent pain is truly its own disease regardless of its underlying cause. Persistent pain, which is also often characterized as chronic or intractable, has all the ramifications of a disease in that it may have pre-clinical and overt phases. The most unappreciated clinical feature […]


Your Handy-Dandy Guide to Connective Tissue Disorders

There are many different types of Connective Tissue Disorders (CTDs) with symptoms that are all very similar. One thing that holds true among all the CTDs, however, is that they are genetic/heritable (at least the ones I am discussing here). The two most common type in which genetic diseases are inherited are: autosomal dominant and […]