A Short Take On The Opioid Crisis #ChronicPain

So yesterday’s STRONG pain meds have really helped my back and loosened off the upset spasming muscles which is great!

But the side effects SUCK!

Insomnia kept me up till around 2am and today I’ve got intense stomach cramps and bloating!

But I think I’ve now established there is not going to be a bowel explosion so it’s safe to leave home!

With the opioid crisis in America constantly gaining momentum I find myself wondering why anyone would choose to abuse these medications when they have such awful side effects. What I’ve described for me is one of the drugs with the ‘most manageable’ side effects the pain team and I could find furthermore yesterday I took one dose but split it in half and took each half hours apart… results urinary retention, nausea, bloating, cramps, insomnia and agitation and that was a low dose.

In America (and some would argue this is starting to happen in the UK) people are having to live with constant chronic unbearable pain because of a culture that treats them as addicts and drug seekers but here’s the thing…

I don’t think I know anyone with chronic pain that does not have to endure side effects as a result of taking opioid medications – truth is every time we take a dose of pain meds we are weighing up if the side effects are worth it!

We are not addicts, drug seeking or looking for attention.

We are trying to live the best life we can getting as much out of life as possible before the list of things we are unable to do grows longer. We don’t have terminal diagnosis but we do live our lives under a time pressure knowing our bodies are slowly giving out. We have to make the most of the times we are well and functioning and you know what sometimes that means we have to take opioids.

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EDS Myths and Facts

The myth about streachy skin nearly stopped me from being diagnosed 2 or three doctors told me that because I didn’t have streachy skin I didn’t have EDS… How wrong they were! 

EDS Myths and Facts As with many disorders that have received little research, there are numerous false assumptions that arise. These are some that have been made about Ehlers-Danlos Syndrome (EDS). They false assumptions stem from a lack of understanding, education, and knowledge about this disorder. Myth: “You don’t have stretchy skin,so you can’t have […]

https://edsinfo.wordpress.com/2016/03/16/eds-myths-and-facts/

Woman With #EDS Fires Back After Being Accused of Misusing Disabled Parking | The Mighty

“I think it’s my turn to say something.”

Source: Woman With EDS Fires Back After Being Accused of Misusing Disabled Parking | The Mighty

 

This is a constant concern of mine initially when I first had a blue badge (UK disabled parking permit) as a blind individual with a guide dog I delt with people asking why I needed one when I could walk fine.

I used to have to justify it, even to friends and I know many others have too. Its all about being able to get your guide dog in and out of the car safely (if you have a guide dog). If the dog is traveling in the front footwell you need to be able to get the car door open as wide as it will go to get both dog and owner out safely, disabled parking bays allow for this and also if your dog is in the boot of the car many have extra space at the back  to allow you to get your dog out without standing in traffic. it makes things a lot safer for all involved. The second reason is parking closer makes it easier for a blind person to get into for example a  store safely. Navigating a car park with traffic can be tricky even with sighted assistance so the less time that is spent in the path of oncoming traffic the better.

Over the years I’ve become more than comfortable explaining that to people but now I have an additional need.

You see I also have EDS and if its a bad day I am DESPERATE to get in that blue badge spot. On a bad day for me I am in a lot of pain and my legs feel like they could buckle at any moment.

This is obviously something people can’t see its totally invisible – in fact I’m pretty sure most of my friends don’t get how bad my bad days are ( with the exception of the inner circle you know who you are) and why is this? because I spent years hiding it.

So basically people don’t judge you just can’t see how much pain the person next to you is in or what they are going through.