New non-emergency health phone number to launch

Please see: BBC News – New non-emergency health phone number to launch.

Now my first question here is do we really need one?

NHS direct has come under a lot of flak for taking doctors and nurses out of hospitals and putting them in call centres – They also have to take action for the worst case senario when someone calls them which often leads to people being Ambulanced to hospital when they don’t neccessicarly need it.

I recently had the experience of being involved in an accident one evening, I should have gone to Hospital, a walk in centre (well at the time more hop in) would have been ideal but NO!

My local hospital with a walk in centre closes its doors at 9pm minor accidents and injuries do not happen in Gosport after this time.

This makes the nearest hospital with any form of A&E style care more then 10 miles away according to Google maps the journey would take around 45minutes in a car – I shudder to think about the cost of that in a taxi.

As it happened I was totally unable to get any treatment after my accident, the next morning I decided the pain of walking was not worth the 5 minutes down the road to the local hop in centre  so didn’t bother, had it been open at the time of my accident I would have defiantly sought medical attention.

So what would we all rather  – A new phone number managed in a call centre with lots of nice forms and paperwork and computer systems that break OR Hospitals actually being open, with enough nurses and Doctors and HCA’s and cleaners and receptionists and the right equipment when you need it?

Mind and Soul : 16 things not to say

Please take a look at the site I got this from its a real gold mine for Christian friendly mental health information… Not that nay MH info sights are not Christian friendly…ah… You get what I mean and its LATE!

Mind and Soul : 16 things not to say.

Things not to say


Yes, these have all been said! Yes, actually to people’s faces! In BOLD: What you said. Then: What the person heard!

Just give it to God!
One quick prayer and it’s all over, sorted, done and dusted!

Have you tried praying?
Just a thought, maybe you haven’t thought about it yet, you know even though you’ve been a Christian for 15 years?

Pull yourself together
You need a stiff talking to and someone needs to tell you

We all feel like that sometimes but you have to snap out of it
You know you’re not suffering anything else that no-one else doesn’t feel now and then so why can’t you just snap out of it like everyone else does?

Are you reading your bible?
I know you’ve been a Christian for 15 years and you use to preach, but maybe you’ve forgotten that when you are so ill and you cannot rationalise, you’re seeing things and hearing things, you can’t make sense of your words and anything or anyone around you, you’re visions blurred and your head feels like it’s going to explode, you can just pick up your bible and claim a scripture! It’s great isn’t it, as simple as ABC

I’m not getting into the boat with you – you’re full of self pity
No, I’m not even going to listen to anything you say as that would mean that I’m getting in the boat with you and agreeing with what you are saying and that would mean that I’ll be helping you simmer in your self pity and I don’t want to be classed as a negative person like you

Just fight it!
Just refuse to feel like that in the name of Jesus, refuse it, rebuke it, don’t receive it?

I’d never allow myself to get in that state
Sorry but what’s happened to you, will never happen to me, I’m fit, healthy and loving life, no way will what’s happened to you happen to me!

You’re looking really well
You look like there’s nothing wrong with you, in fact I think you’re making it all up, cause to me, you look like everyone else

It’s your own fault
I was reading Job the other day, what sin is in your life that you haven’t confessed and dealt with yet?

There’s no such thing as depression, you’re just feeling sorry for yourself
What is all this poppycock about depression and illness? you need to get a grip and stop pretending you are ill

You’re a hypochondriac
Honestly, there’s people out there who are really ill, I think you enjoy it

Shouting at someone
I need to disciple you, discipline you and put you right, now STOP IT

Why can’t the doctors do anything?
Why can’t the doctors sort you out? I mean they’ve always sorted me out and everyone I know so why can’t they sort you out? Tell me? It’s very frustrating and I can’t work it out

You should just stop taking all those tablets and just trust in God
Now I have a physical condition so if I stop taking my tablets, I would die, if you stop taking your medication nothing will happen apart from you will be trusting God more and you won’t have any side effects, so simple!

It’s a choice – you can change if you want to
Yeah… of course I choose to hate my self and wish I was dead… Thank you for pointing out it’s just a choice that I need to make

Things to say instead


This is OK to say in BOLD and This is why it’s OK. It’s not as hard as it sounds. Just be kind and empower them

If you want to talk, I’m here to listen
I care about what’s happening to you and need to listen to you as a friend to show you that. Then I can understand and help you. I realise this is going to take longer with someone who is mentally ill.

I’m praying for you, do you want me to pray for you now?
I don’t have any magic answers and I’m not trying to give you one but what I can do is pray for you. I know God answers prayer.

I have some practical wisdom I can share with you.
Because I’ve spent time with you and listened to you, I can see you need rest, space, food, spiritual advice etc and can help you.

I have no idea what it must feel like because I’ve never suffered from mental illness but I can understand it better now
I can’t contemplate what it must feel like to be mentally ill and I can now have sympathy to anyone with mental illness because I understand it now.

Could I help you spiritually in any way, perhaps share some scriptures that you may be able to draw strength from?
I can’t imagine what its like to not be able to draw from my bible because I’ve lost the ability to think clearly and be in control of my mind. If I can help by writing some scriptures out or reading from the bible for you, or get some bible tapes for you, I will.

Shall we go out together somewhere? Can I take you out somewhere?
Special times with friends help and if I can help take you out for a while it may help you escape from the same surroundings and focus on something else for a while. It must be awful when you are to not be able to go out at all because you are ill and you’ve lost your work world and other social outlets.

I can see your not feeling great at the moment, do you want me to go and come back tomorrow or another day?
I can appreciate that if you’re having a really bad day, I should come back another time and I’ll be able to help better

Do you need help getting your medication or a lift to the specialists?
This is a really practical thing that you need and half an hour of my time would be a real answer to prayer to you

Talk to them about something positive in their life, or an improvement that you’ve noticed
Sometimes when you are so in the middle of something and experiencing it every day you can’t see the small improvements that are happening or recognise an achievement or progress

Find out any likes, hobbies, what makes them laugh and work towards helping them achieve one of these
Laughter’s good medicine, we all need purpose in our lives and to feel we’re achieving something.

Help them work through a panic attack, and irrational thoughts.
Help them to breathe by going through simple exercises, pray for them, talk through calmly their thoughts and help them rationalise them.) All the physical effects it can feel like you are dying and is very scary. This can be very draining yourself especially if emotionally attached so take time to recuperate yourself after.

Don’t give up on them; it can take along time and a lot of hard work to help someone recover. They need friends and loved ones to stick by them.
Medication alone won’t do it; it’s all the social help and one to one work and prayer that will see the breakthrough

Alan and Amanda Stephenson, 05/05/2010

London’s Mascot’s

This week the organisers of the 2012 Olympics and Paralympics announced and unveiled the mascots for the games. They have proved to be VERY controversial as my friend Sam highlighted in his blog, as well as a lot of headlines tearing the mascots apart.

I am pleased that one of them has a link to disability and is remembering that the UK held the first ever Paralympics which is defiantly  something to be proud of.

In an effort to be accessible which I am quite appreciating the organisers have released the video showing the first part of the story of Wenlock and Mandeville with audio description, for those of you that don’t know what that is watch it and you will soon understand.

You Know You’re a Blind Person When…

Last week I read this article by Charlie Swinbourne Titled “You Know Your Deaf When…(Part 1).

This of course got me thinking of the you know your blind when hilarity this is something I have often discussed with blind mates and it stuck me that I have failed to post something like this before. Thanks Charlie for bringing it to my attention!

I must say all of these things you are about to read are true and have happened.

I would also like to add that if you have your own additions to the list you are about to read stick them in a comment with your name, URL and whatever and I will add them in!

Ok so after all that…

You know you’re a blind person when…

  • You accidentally wash your hair in factor 30 sun creme.
  • You don’t have a single pair of matching socks.
  • You hand your sister a container which you think is shampoo, your slightly less blind sister manages to see that it is in fact Hob Bright oven cleaner.
  • You go on holiday and accidentally come back with someone else’s Guide Dog.
  • You persuade a friend to play darts with you and hit your friend in the leg when it’s your turn.
  • The phrase ‘Blind Drunk’ has a totally different meaning to you.
  • You are totally unaware that the city you live in is completely consumed with fog… it always looks like that to you!
  • You HATE the idea of Shared streets!
  • You hate car drivers except when they are driving you somewhere.
  • Because you have some vision strangers refuse to accept that you are blind.
  • You get told off by the Police for walking into a bollard, they think you have had enough to drink already; ON YOUR WAY TO THE PUB!
  • Having a Guide Dog or cane means you never get ID’d in pubs.
  • You have full conversations with what you think is your friend, you later discover she’s not actually there.
  • Walking straight past the person you are supposed to be meeting is a regular occurrence even if it is someone you know well such as a parent.
  • Reading the cooking instructions on the food you purchase is totally impossible so you guess.
  • A person walks up to you says your name and starts a conversation you talk for a bit and they leave… You still have no idea who it was.
  • What colour are my trousers?’ is a perfectly reasonable question to ask a date.
  • You high-five the persons face instead of their hand.
  • Other people tell you to ‘watch out’ and then apologise and get all embarrassed.
  • You don’t care about 3D.
  • You stop traffic… With your cane/Guide Dog.
  • People you meet tell you all about their blind aunt flora (or other relative) and ask if you know her… After all, all you blindies know each other well.
  • The thought of you running scares your off duty Guide Dog so much that he proceeds to jump on you to make you stop.
  • You wear ear plugs to gigs… your ears are very valuable.
  • Walking along you hold on to your friend’s arm EVERYONE assumes you’re a couple.
  • Audio Description gets you VERY excited.
  • You forget that the friends you are meeting can see, you text them telling them exactly where you are sitting instructions on how to navigate to your position and what colour jumper you are wearing.
  • ‘How long is your cane?’ is a totally innocent question.
  • You spread Marmalade on your toast and take a big bite… Only to discover its actually mustard.
  • You walk into glass doors.

BBC – Ouch! disability – Play – Dear Disabled Friend – Andre Jordan: Dear Disabled Friend #65

BBC – Ouch! disability – Play – Dear Disabled Friend – Andre Jordan: Dear Disabled Friend #65.

Oh its all about the ‘S’ Word!

For those of you that don’t know my autobiography is going to be called “Brave Special Different” Due to the frequency of the times these words are used in my direction as a form of patronisation, I dislike this VERY much!

And don’t get me started on “differently abled”… I swear I’m not a violent person but someone saying those two words in that combination could push me over the edge!

Marian Keyes: ‘I understand the pain of her depression’ – Telegraph

Marian Keyes: ‘I understand the pain of her depression’ – Telegraph.

A incredibly well written and accurate portrayal of what it can feel like to live with a depressive episode, well worth a read for anyone that says people with depression need to ‘cheer up’.

Bill Oddie has also recently hit the headlines for his own experince of depression most recently

 

The Daily Mail – Bill Oddie in psychiatric hospital battling another bout of depression

 

Train Travel floored

I write this sat in a hotel connected to a garage in the middle of nowhere the hotel has wifi but charges a whopping £5 for one hours access – which I refuse to pay.I am in the middle of nowhere a £8 taxi journey away from Didcot train station, I am here unpaid on a course for the job I am doing at university this year.

To get here I got a volunteer to drive me to Fareham station where I met a support worker and got on a train to Southampton from there we got on another train headed for Oxford, we had to get off at Reading station and change trains again to get to Didcot.

All was going well until we reached our second train, upon boarding it became apparent that the train was hideously in accessible. We asked where the wheelchair area was assuming there would be more space, on getting there we discovered that it was literally an empty space with a small table off to one side.

The train was rather busy and full of older people, who where insistent on sitting down first and finding there reserved sears.

This created a battle field incorporating train staff, my support worker, me Gus and a million grumpy old farts that where fully prepared to pushed there way forward not caring who they ran over with there suitcases or stepped on.

My support worker put her bag down on a chair closest to the wheelchair bay only to turn around and discover a woman had picked it  up and was about to move it somewhere else. There was carnage in the carriage, people and bags everywhere refusing to move to let other people past because there booked seat was that way and they wanted to sit in it now.

The train was delayed by 6 minutes whilst the gridlock continued with train staff and other passengers shouting at large amounts of old farts to move out of the way and let other people such as myself past.

Eventually after much shuffling and complete disregard to other people the large groups of old farts sat down.

Then I discovered that the wheelchair seat had no seats around it, basically there would be space for Gus but not for me. None of the seats around it had any room for Gus to lay under them so what was I supposed to do?

In the end I sat in the wheelchair space on the floor for over an hour and a half, I spent this time having poor Gus being stepped on even after I had warned people that he was there, I was also stepped on, people tried to block us both into the space with bags and even tried to wheel them on top of us.

I remain utterly disgusted by this, I was basically a piece of luggage, one particular old fart of a commuter stepped on Gus  after I had already warned her that he was there, I pointed this out to her and then she patted me on the head and apologised, I was fuming!

Then the guard came through the train and I asked him a question he turned around and answered talking to my support worker instead of to me, referring to me as she and stating that they have special assistance “for people like her”.

I snapped I told him to talk to me not about me I was on the verge of rude but I had had enough by that point.

I have never had a train journey that bad, I am honestly appalled by it I have heard horror stories from other disabled people that have had horrific train journeys, but I have always felt positive about travel by train and enjoyed it as a largely stress free experiences, but now the tables have turned, my journey was utterly horrific thanks to the train company for not training its staff as to how to talk to disabled people, not making there trains accessible and the other passengers being horrible old farts who only cared about themselves with no consideration for others – I hate people that are so selfish!

BBC – Ouch! (disability) – Opinion – Disability Bitch – The ultimate Disability Bitch

BBC – Ouch! (disability) – Opinion – Disability Bitch – The ultimate Disability Bitch.

(One hell of a block quote coming up!)

The ultimate Disability Bitch

20th August 2009

Readers, I know I’ve said some unkind things over the years. I know I’m not always right. Actually that’s not true, I am always right. What I mean to say is I know that some people disagree with me, some of the time. They are idiots, obviously, but it does happen. What I’m struggling to say is that I feel I’ve been quite restrained over the years. There are many things I could’ve said that I didn’t, for fear of offending the nation. But today that’s all about to change.

The main thing, the real biggie, the important observation of all important observations, the one that I’ve deliberately held back on all these years is … and I’m sorry, readers, but I just can’t keep it in anymore. I’ve had enough. Hold onto your hats. I. HATE. NORMAL. PEOPLE!


There. I’ve said it. And it had to be said. You want me to explain myself now I suppose? OK. Well, it’s just, I’ve been on holiday for a fortnight now and I’ve had to watch the Normals parade up and down the beach, exposing their disappointingly monotonous flesh from tip of perfectly proportioned toe to the exquisitely coiffed hair on their textbook lovely heads, untroubled by imperfect mental health, functioning as human beings without the aid of seven different daily medications, and skipping along the sand without mobility aids like it doesn’t even require any effort.

Readers, I tell you what: if I didn’t hate them, I’d pity them.

Imagine how boring it must be, to wake up every morning knowing you’re probably not going to fall over, risk death by attempting to board a train in rush hour or play Russian roulette with your very life by forgetting whether or not you’ve taken your tablets at lunchtime. You have to feel sorry for them. No wonder they park in blue badge spaces without permission and use disabled toilets even when they’re not actually disabled. It’s the only excitement they get in their tiny little normalised lives: the thrill of seeing how long they can get away with occupying a ‘handicap area’ illegally before some junior authority figure has a stiff word with them. It’s the only thrill they get! Poor souls!

Don’t feel too sorry for them, though. There is one very specific reason why I hate the lot of them. It’s this: they all think we want to be like them. The sad, deluded chancers.


Seriously, here’s an example: The other day I was at a big party. And because it was a big party, I was using my most fashionable walking stick, co-ordinated perfectly with my drop-dead gorgeous outfit. This had not gone unnoticed: I was working the room.

Soon, a disappointingly dreary non-disabled stranger was making her way toward me. Of course she was. I am uber-cool.

“Disability Bitch?” she said. “You’re the Disability Bitch, aren’t you? I’m very sorry you have to use it, but that is a beautiful walking stick.”

Two things: first, of course it is a beautiful walking stick. Do you think I, Disability Bitch, would make my way to a massive festive gathering with anything other than a beautiful walking stick? Why are you surprised? Clearly you are of the belief all cripples are legally obliged to carry around ugly NHS issue grey plastic disability aids. That, you dear, sweet, naive little able bodied random party guest, is because you have probably only ever seen photographs of disabled people looking pathetic on charity advertising hoarding , and never actually met a disabled person in real life.

Let me try to find an equivalent situation you’d understand. Ah yes: It would be rather like me presuming all non-disableds look like the girl off the Wonderbra ad. They don’t. They are just trying to sell you something. You gullible idiot.


Second, why the hell are you, a tediously normal person who I have only just met this minute, feeling sorry that I have to use a stick? What business is it of yours how I choose to accessorise myself? You know nothing of my life, and yet you suppose it is a disappointment to me that I have to use a mobility aid, even while acknowledging that my mobility aid is one of the most gorgeous objects you have ever seen in your entire life.

Basically, you tiresome specimen of humdrum normality, you are assuming that your life is better than mine simply because I am disabled and you are not. How arrogant is that!

Give me one good solid reason why your life is better than mine. I bet you even have to pay full price to use public transport and sometimes have to stand up on buses. Yeah? I don’t. See! I win!

Oh dear. I did warn you I was especially cantankerous this week. I know. Every self-respecting cripple thinks these things in the privacy of their own head, but now I’ve gone and said them out loud.
I realise I may have single-handedly set the cause of disability rights back about twenty years. After all, it is the twenty first century, right, and we’re all supposed to be holding hands together now – those of us who have hands. We should apparently be joining forces and working together, disabled and non-disabled alike. Yawn. Do I look like I care?

If you want to be friends with non-disabled people, readers, that’s fine. Campaign for your own disability rights. Me, I’m going to be sitting here in my own little ghetto, minding my own business. I never wanted to be normal anyway.

The reason for such a large block quote, she may have not said it in the most dyplomatic way (its Disability Bitch, what where you expecting) but she is so 100% definatly right!

I hate it when ‘normals’  feel sorry for me or even worse fill me up with words such as ‘brave’ (my own personal most hated word) and inspirational.

Braille: A necessity for a modern day VI journalist?

Since my right eye deteriorated so suddenly I have been solely reliant on my left eye for every single day to day task, from reading large print resources to putting on make up one eye must to the job of two.

As a result I am getting more eye strain than ever before which tends to make life a little tricky, hopefully over time my eyes and brain will adjust to the way things are now but there is know way of knowing when or if that will completely happen.

As a result my university lecturers  have strongly advised me to learn braille and they are not just saying this out of the blue, they have been doing there research and have spoken to several blind journalists who have all have stated the importance of braille for VI journalists and have declared that it is a crutial must have skill.

The issue of course is that I have absolutely no experience of learning braille and will have to learn it from scratch, something that I know will be very difficult  considering how late I will be starting to learn.

In addition I can’t afford the price of even a basic Brailler something that is quite essential in order to learn how to write braille, I have been trawling the web already trying to find a cheap model or a second hand one but have so far come back with nothing. if anyone thinks they may be able to help with this please get in touch!

I also have to find a Braille tutor to teach me, I have absolutely no idea on where to start looking or who is going to pay for the lessons as cost is going to be a serious issue even if I do get a part-time job.

I really do see the possible benefits one thing I have learnt through the whole process of my right eye deteriorating is that nothing is guaranteed and all though it is a cliché nothing should be taken for granted. With this in mind I defiantly need to start learning Braille so I guess I will keep you posted.